Genetic disorders, those passed from parents to offspring in the genetic code, and people can be carriers for a disease, passing it on to their children without knowing. Because genetic diseases are caused by errors in the genetic code, doctors can generally only treat the symptoms
Categories
Down SyndromeTay-Sachs |
Recommended Resources
American Board of Genetic Counseling
ABGC, the American Board of Genetic Counseling, is a non-profit organization providing information on genetic testing and counselling.
http://www.abgc.net
CGCF, the Canadian Gene Cure Foundation, is a non-profit organization providing information on human genetics research testing and programs.
http://www.genecure.ca
The Cleft Palate Foundation is an American organization that helps people with cleft palates. You can find doctors in your area that can help children with this problem. The site also has resources for health care professionals interested in this condition. This website is also available in Spanish.
http://www.cleftline.org
Coriell Institute for Medical Research
The Coriell Institute for Medical Research is a non-profit research organization dedicated to understanding the genetics of diseases and disorders. Offers events, services and information about education and training.
http://www.coriell.org/
Features information on how DNA science may be applied to specific situations, as well as its code, possible manipulations, and genome discoveries.
http://www.dnai.org
The Genassist web site provided information and other resources on genetic counselling and testing for people with concerns about inherited diseases, disorders, and conditions.
http://www.genassist.com/
The Genetic Health web site provides educational information and other resources about the genetic risk of diseases, disorders, and conditions.
http://www.genetichealth.com/
Web site provides information and other resources for referrals genetic risk assessments, counselling, and certified clinics.
http://www.kumc.edu/gec/referral.html
The Angelman Project is a documentation about the Angelman Syndrome, it is the first of a series of documentaries regarding rare disorders prepared by GeneticaLens. GeneticaLens provides information by means of documentation of individuals who have rare disorders.
http://www.angelmanproject.com
The Hereditary Disease Foundation is a non-profit organization providing information and other resources for people requiring genetic testing and counselling for inherited diseases.
http://www.hdfoundation.org/
Mountain States Genetics Network
The Mountain States Genetics Network is a non-profit organization providing information and other resources on genetic testing and counseling in the region.
http://www.mostgene.org/
National Gene Vector Laboratories
NGVL, the National Gene Vector Laboratories, is a non-profit organization providing clinical grade vectors for phase I/II gene therapy clinical trials.
http://www.ngvl.org
National Society of Genetic Counselors
NSGC, the National Society of Genetic Counselers, is a non-profit organization promoting the profession as a legitimate part of overall health care.
http://www.nsgc.org
The Pregnancy Risk Network offers free online and telephone information about possible effects that medications, alcohol, and illness have on babies in the womb.
http://www.pregnancyrisknetwork.org
The T18 Moms web site is dedicated to helping families, and caregivers cope with a diagnosis of Trisomy 18, also known as Edwards syndrome.
http://www.t18moms.com/
Trisomy 18 Support provides support group information and guides for Trisomy 18 families to connect and share with each other.
http://www.trisomy18support.org/
Trisomy Online offers an online support groups for those whose lives have been touched by the diagnosis of a trisomy chromosomal disorder.
http://www.trisomyonline.org/
