Spina bifida is a rare condition in which the spinal cord is malformed and lacks its usual protective skeletal and soft tissue coverings. Here you will find information pertaining to spina bifida, specifically its diagnosis, treatment, and prognosis. You will also find support group information for patients diagnosed with spina bifida and their caregivers.
Regular Websites
SBHAO, the Spina Bifida and Hydrocephalus Association of Ontario, is a non-profit organization which offers support and research into the causes and treatment of this rare disease. - SBHAO
http://www.sbhao.on.ca/
SBHCA, the Spina Bifida and Hydrocephalus Association of Canada, is a non-profit organization which provides information, as well as current news, and research development details. - SBHCA
http://www.sbhac.ca/
The Spina Bifida Family Support Group provides families with on-going emotional support; with practical and educational information. - Spina Bifida Family Support
http://www.spinabifidasupport.com/
Web site is specifically designed to compare two approaches to the treatment of babies with spina bifida: surgery before birth and surgery after birth; with an FAQ and glossary of terms. - Spina Bifida Moms
http://www.spinabifidamoms.com/