Spina bifida is a rare condition in which the spinal cord is malformed and lacks its usual protective skeletal and soft tissue coverings. Here you will find information pertaining to spina bifida, specifically its diagnosis, treatment, and prognosis. You will also find support group information for patients diagnosed with spina bifida and their caregivers.
Recommended Resources
Spina Bifida and Hydrocephalus Association of Ontario
SBHAO, the Spina Bifida and Hydrocephalus Association of Ontario, is a non-profit organization which offers support and research into the causes and treatment of this rare disease.
http://www.sbhao.on.ca/
Spina Bifida Family Support & Hydrocephalus Association Canada
SBHCA, the Spina Bifida and Hydrocephalus Association of Canada, is a non-profit organization which provides information, as well as current news, and research development details.
http://www.sbhac.ca
Web site is specifically designed to compare two approaches to the treatment of babies with spina bifida: surgery before birth and surgery after birth; with an FAQ and glossary of terms.
http://www.spinabifidamoms.com/
