Contains web sites devoted to medical and educational information for birth defect prevention.
Regular Websites
The Albinism Fellowship UK is a non-profit organization that aims to provide information, advice and support, for people with Albinism in the United Kingdom. - Albinism Fellowship UK
http://www.albinism.org.uk/
BDF Newlife is a non-profit organization which provides information, support and nursing advice for all birth defect prevention, and aftercare. - BDF Newlif
http://www.bdfnewlife.co.uk/
BDRC, the Birth Defect Research for Children, provides birth defect information, parent networking, resource referral and news updates on birth defect prevention. - BDRC
http://www.birthdefects.org/
Web site provides an overview of preimplantation genetic diagnosism including summary of reasons why this option might be right for you. - CARE: PGD
http://www.care-life.com/embryo_screening.htm
Web site features information about CHARGE Syndrome, and how a series of birth defects that can result in both hearing loss and blindness. - CHARGE Syndrome
http://www.deafblind.com/cskmoss.html
Drugs in Pregnancy and Lactation : Safefetus.com
Database of medications -- prescription and OTC -- and their risks when taken during pregnancy and lactation. - Drugs in Pregnancy and Lactation : Safefetus.com
http://safefetus.com/
Illinois Teratogen Information Service
Provides information regarding all types of teratogen exposure during pregnancy and breastfeeding. - Illinois Teratogen Information Service
http://www.fetal-exposure.org/
Katherine Elizabeth Foundation
The web site for the Katherine Elizabeth Foundation contains a glossary of Birth Defects terms, and other resources for further prevention information and research. - Katherine Elizabeth Foundation
http://www.katherineelizabethfoundation.org/
The March of Dimes web site covers the causes, characteristics, and types of Spina Bifida; complete with treatment options, including fetal surgery. - March of Dimes: Spina Bifida
http://www.marchofdimes.com/professionals/681_1224.asp
Michael Gerard Puharic Memorial Fund
Web site provides financial and educational support to parents with newborns affected with Trisomy 13 and other chromosome disorders. - Michael Gerard Puharic Memorial Fund
http://www.michaelsfeat.org/
National Birth Defects Prevention Network
The National Birth Defects Prevention Network (NBDPN) is a non-profit organization which seeks to improve the dissemination of information, i.e. birth defects statistics and research. - National Birth Defects Prevention Network
http://www.nbdpn.org/
National Organization on Fetal Alcohol Syndrome
The National Organization on Fetal Alcohol Syndrome is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy. - National Organization on Fetal Alcohol Syndrome
http://www.nofas.org/
Newborn Screening.com is regularly updated with information and news pertaining to testing and screening. Web site provides condition profiles, and a discussion forum. - Newborn Screening.com
http://www.newbornscreening.com/
The National Organization of Albinism and Hypopigmentation (NOAH) is a non-profit organization dedicated to promoting awareness of the condition. - NOAH
http://www.albinism.org/
The Pregnancy Risk Network offers free online and telephone information about possible effects that medications, alcohol, and illness have on babies in the womb. - Pregnancy Risk Network
http://www.pregnancyrisknetwork.org
Web site provides information and support for Trisomy 18, 13, and other related chromosomal disorders which occur in utero. - Rainbows from Down Under
http://members.optushome.com.au/karens
The Save Babies Through Screening Foundation is a non-profit organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders and diseases detectable through newborn screening. - Save Babies
http://www.savebabies.org/
Spina Bifida: General Information
Web site contains an overview of spina bifida, which occurs when the spinal column fails to develop and close properly during the first month of pregnancy. - Spina Bifida: General Information
http://www.shrinershq.org/_preview/hospitals/los_angeles/services/spina_bifida.aspx
The T18 Moms web site is dedicated to helping families, and caregivers cope with a diagnosis of Trisomy 18, also known as Edwards syndrome. - T18 Moms
http://www.t18moms.com/
The Hospital for Sick Children - Motherisk
"Your source for evidence-based information about the safety or risk of drugs, chemicals and disease during pregnancy and lactation." Teratogen information for professionals and parents. Up-to-date site offers a hot line as well. - The Hospital for Sick Children - Motherisk
http://motherisk.org/index.jsp
Trisomy 18 Support provides support group information and guides for Trisomy 18 families to connect and share with each other. - Trisomy 18 Support
http://www.trisomy18support.org/
Trisomy Online offers an online support groups for those whose lives have been touched by the diagnosis of a trisomy chromosomal disorder. - Trisomy Online
http://www.trisomyonline.org/